Dr Staffan Lindblad, The Karolinska Institute, discusses an approach to share disease registry information for decision making
This international seminar explored pioneering work in Sweden using disease/quality registers.
A database that includes the details of the majority of patients with rheumatological disease in Sweden has been developed by Professor Staffan Lindblad and colleagues. This database is in part updated by patients online, for example in recording their health status particularly after changing treatment regimens.
The data is combined with predictive modelling techniques to ascertain the best possible treatment combination for individuals with rheumatological disease. Professor Lindblad is a recognised innovator in Sweden and has produced some remarkable results for patients.
This approach could be useful to develop in England. With the availability of routinely collected person-level data on encounters with the NHS, there is potential to take Professor Lindblad’s work a step further to link information on treatment combinations with use of care and cost.
At the seminar delegates had the opportunity to:
We were delighted to welcome speakers including:
The event was chaired by Professor Nick Black, Professor of Health Services Research, London School of Hygiene and Tropical Medicine.
For further information on our work on predictive risk please visit our dedicated area of work page.