Adult social care statistics: the potential for change

The lack of funding in social care doesn’t only mean that services are unable to meet demand – there is also under-investment in data and analytics. Laura Schlepper explains why social care data matters and what would help to increase its potential. This blog was originally published by the UK Statistics Authority on April 24.

Blog post

Published: 28/04/2020

Social care is in crisis across Great Britain. With responsibility for social care being a devolved matter, each country has its own system in place but all share common problems. Given the urgency of the crisis, which is exacerbated by the current Covid-19 pandemic, there is growing interest in what others are doing and what works and what doesn’t.

While a fair bit of work has been done looking at the international picture, we know less about what is happening closer to home. What are the other British countries doing, what do they have in common and where do they diverge? What can we learn from each other’s successes and failures, and what solutions can we adopt?

We have spent the last couple of months immersing ourselves in the different social care systems across the UK – trying to get underneath their peculiarities and identifying common ground and points of learning. But what we found has been a frustrating lack of high-quality, comparable data. Delving into the data landscape across those different UK countries, we quickly learned to realise the limitations of our undertaking and the urgent need for data improvements.

Within this context, we welcome the publication of the review of adult social care data across Great Britain by the Office for Statistics Regulation (OSR). The call for better data and greater collaboration across the countries is timely, and the individual country reports are an invaluable resource for understanding the strengths and weaknesses of social care data within each country and the underlying policy differences.

Why data matters

Lack of funding in social care does not only mean that services are unable to meet demand. Equally important is the under-investment in data and analytics.

This is not just a frustrating problem for the small group of social care researchers and data enthusiasts. Poor data matters in very practical terms. It hinders the development of a strong evidence base to solve problems and guide effective policy-making, aimed at improving care delivery and the quality of life of service users and their families. It means we cannot understand if one country’s approach has been successful or not and how it might work in another place.

For instance, before the 2019 general election the introduction of free personal care in England akin to the system in Scotland was proposed. To assess whether this or other proposals would be a viable or desirable option for England, we need to look at data. It sheds light on the distinct contexts, the nature of the different social care systems and the impact of different policies and initiatives. It allows for comparisons and evaluation of best practice and it lends concrete evidence to lived experience and anecdotes.

It sounds simple, but such comparisons have proved far from straightforward. So what would help?

1. Ease of access

Easy and straightforward access to relevant data is crucial to aid research, policy-making and the public in making informed decisions. However, similar to the data users the OSR spoke to, we struggled to find relevant statistics, often having to navigate different websites and sources, in some cases with data deeply hidden. Of help were portals aiming to collate all available data, such as the National Social Care Data Portal for Wales. Seeing this realised across the countries will help to increase the use and profile of social care statistics.

2. Comparability

Once data has been accessed, we need clear definitions and improved guidance on what statistics entail, as well as detailed statistical commentary. Across all countries, data quality issues and missing returns are a problem – the impact of which was not always clear.

Another core issue identified by the OSR report, and in our work, is the comparability of data across social care activities, time and regions. Wanting to compare key social care indicators across the countries, we often struggled to understand what exactly is captured.

Even comparing headline figures such as the number of people receiving care in each country was far from straightforward. For instance, does access data include signposting to services as opposed to actual delivery of some form of social care activity? Does it include meals on wheels, or are those reported separately?

3. Consistency

To evaluate the impact of different policies and approaches we require consistent data collection and reporting over time, but were faced with breaks in timelines and changing definitions and processes. As highlighted by the OSR, data producers in all countries should where possible follow harmonised principles, such as on informal care, which would aid comparability across regions and settings.

4. Comprehensiveness

Linked to this, data did not always meet our needs. We would have liked to get more understanding of characteristics of those receiving care, such as more granular age breakdowns, their level and nature of needs, and the type of care and care setting. And we identified many gaps in the data that limited our ability to understand the intricacies of the different systems.

Across the board, robust data on informal care-giving or self-funders are lacking and are estimates at best. Likewise, we have little understanding of undermet and unmet need – making it difficult to appreciate how well the different systems meet demand and plan for the challenges ahead.

The way forward

The publication of the review of adult social care data across Britain is an important advocate for change – calling for improvements to existing statistics, including data coherence, standardisation and quality, filling data gaps, and sharing of best practice.

Given the Covid-19 crisis, the need for good data has become more apparent than ever, as has the crucial role of social care in our society. Implementing the report’s recommendations will aid researchers in developing solutions through a robust data landscape and facilitating cross-border cooperation and learning. This will ultimately improve care for all citizens across the UK.

We hope that respective bodies will take the findings to heart, seeking to improve ease of accessibility and data quality to facilitate greater use of high-quality data, to standardise processes ensuring comparability across settings and countries, and filling the gaps in the data. Where resources are low and problems are shared, this is best done in collaboration.

This blog was originally published by the UK Statistics Authority on 24 April, and is reproduced with their permission.

For more information, please see our series of explainers on adult social care in the four countries of the UK.

Suggested citation

Schlepper L (2020) “Adult social care statistics: the potential for change”, Nuffield Trust comment.