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Living with Ehlers-Danlos Syndrome and why better data is so important

Blog post 14/05/2019Sophie Castle-Clarke

Sophie Castle-Clarke describes what it’s like to live with Ehlers-Danlos Syndrome, the cost to the NHS of a system currently failing rare disease patients, and what can be done to improve matters.

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Children and young people

Indicator update 14/05/2019

In our latest update we've looked at trends in the quality of care for children and young people.

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